7-24-12/Ureter Good, Creatinine High, and Bravery

Things at Yale went good and so/so.   The ultrasound was good, so it appears that the Ureter Revision was a success. Thank G-D. However, my creatinine is still high – 2.3 now. They want to give me a “vacation from Yale” for two weeks, but unless the creatinine is substantially better, have a biopsy … Continue reading

7-12-12/3 months & Staples Out

Today marks the 3 month anniversary of the transplant surgery. What a bumpy road!   It feels like much longer as the struggles have been great.   On the upside – all 49 staples came out of my abdomen today. It was a dramatic turnaround – the antibiotics helped me avoid an infection and actually … Continue reading

7-9-12/Stable?

I was at Yale this morning and things appear to be stable at the moment. Creatinine was 2.1 – statistically the same as last time – and the same it’s been for over a week. Not a great creatinine reading, but it’s stable.   They did an ultrasound and that showed no fluid in the … Continue reading

7-5-12/Some Explanations

I was at Yale today and they have an explanation for my lack of bladder control – something I didn’t mention earlier. It’s not horrible, but it is definitely annoying. They think the stent that was put in to help the ureter and bladder heal has shifted. This shift puts pressure on the bladder and … Continue reading

7-2-12/Enough Already

Okay, they said there would be bumps in the roads. I get that. I am, however, ¬†getting sick of potholes that prevent me from reaching my destination – some consistent level of health. Not even great health – just consistent health. My standards are lowering by the day.   I was back at Yale today … Continue reading

6-30-2012/Home

I came home from the hospital this afternoon and proceeded to sleep the day away. Hospitals are not the best places to rest as they are always talking to/sticking/poking/pulling, etc on you. You might sleep 10 hours, but never in a row.   I am still in a lot of pain, but the tramidol is … Continue reading

6-29-12/Crappy Day

Well, Friday was pretty crappy. They took out the catheter and the drainage tube. Although both are a relief, neither are pleasant experiencs. Frankly, the drainage tube is much worse. I almsot kicked the doctor who took it out. It’s not really painful as much as REALLY uncomfortable. It feels like your body is being … Continue reading

6-27-12/Surgery A Success But Pain Bad

According to both surgeons, the surgery went very well. Things had to be¬†moved around a little, but basically, was in range with what they expect. They were pleased.   I am relieved. Part of the concern going in was whether the ureter revision would work. We won’t know if we are totally out of the … Continue reading

6-25-12/Surgery Tomorrow

I don’t really know what to say. I spent most of today staring out into space and trying to rationalize this – or at least, make peace with it.   No such luck.   I will try to keep everyone up to date, but don’t expect anything for a few days, at least.   Thank … Continue reading

6-23-12/I Can’t Do This Again

I am really struggling. I don’t know if I can muster the strength to go through this AGAIN!   I know I don’t have a choice – and everyone keeps reminding me that – as if it helps. However, in many ways, I feel worse than going into the last surgery. Physically better overall, but … Continue reading