12-31-12/A New Year with a New Kidney

Reflecting on 2012, it had to be one of the longest years of my life.   In April was the kidney transplant, June the ureter revision, followed by continued turmoil as my body, my family, and I, adjusted to having a new organ, new meds, and a new lease on life.   It was tough … Continue reading

8-1-12/Bad News

One of the nephrologists at Yale called today. It’s never good when the doctor calls instead of one of the nurses.   There is already damage to my new kidney. They know I have BK Virus, but it is unclear whether the damage is directly related to that alone, however.   The thought is that … Continue reading

7-24-12/Ureter Good, Creatinine High, and Bravery

Things at Yale went good and so/so.   The ultrasound was good, so it appears that the Ureter Revision was a success. Thank G-D. However, my creatinine is still high – 2.3 now. They want to give me a “vacation from Yale” for two weeks, but unless the creatinine is substantially better, have a biopsy … Continue reading

7-20-12/Hope and Clarification & Life Expectancy

I had an ultrasound at Yale today and it looked pretty good. They want to repeat Tuesday, but if that looks unchanged, then we can celebrate. This seems to imply that the second surgery (the ureter revision) was a success, making the transplant a success as well.   My creatinine is 2.2 – the highest … Continue reading

7-18-12/Cystoscopy #2

The stent came out today via cystoscopy. It wasn’t as bad as last time because I knew what to expect.   As I’ve said before – it’s uncomfortable for the duration, but only really painful for 2-4 seconds. During that time it’s like someone is standing on your bladder.   This time it took 2+ … Continue reading

7-17-12/BK Virus pt. 2

I spoke to Yale today and feel a little better. First, they moved my clinic appointment to Friday. The stent comes out tomorrow, so by the end of the week we should know how the ureter revision went.   We also spoke about the BK Virus. It sounds like two medications (prograf and prednisone) is … Continue reading

7-16-12/BK Virus

Today was supposed to be a day I didn’t hear from Yale. I had clinic scheduled for Thursday and my cystoscopy got moved to Wednesday. So other than the delight of waiting for that procedure on Wednesday things were supposed to be low-key.   Not so much. Clinic called today and left a message as … Continue reading

7-12-12/3 months & Staples Out

Today marks the 3 month anniversary of the transplant surgery. What a bumpy road!   It feels like much longer as the struggles have been great.   On the upside – all 49 staples came out of my abdomen today. It was a dramatic turnaround – the antibiotics helped me avoid an infection and actually … Continue reading

7-9-12/Stable?

I was at Yale this morning and things appear to be stable at the moment. Creatinine was 2.1 – statistically the same as last time – and the same it’s been for over a week. Not a great creatinine reading, but it’s stable.   They did an ultrasound and that showed no fluid in the … Continue reading

7-5-12/Some Explanations

I was at Yale today and they have an explanation for my lack of bladder control – something I didn’t mention earlier. It’s not horrible, but it is definitely annoying. They think the stent that was put in to help the ureter and bladder heal has shifted. This shift puts pressure on the bladder and … Continue reading