Friend In Need of Kidney

First off, everything is still stable with me. Otherwise, nothing much to report there. Things are status quo.   Secondly, and much more importantly, I have a friend from my temple, who is at 16% kidney function and is looking for a live donor. His brother in law was going to donate, but they just … Continue reading

8-11-13/Stable, but still tired/Organ Donation/Medications

A few things in today’s post.   First, I am stable at a Creatinine of 2.1. That’s the good news. The bad news is that I am still stable at a Creatinine of 2.1, which equals an eGFR of 39. ¬†For those outside of the know, that means my one good kidney is operating at … Continue reading

6-4-13/Still Stable

I was at Yale yesterday and my creatinine was 2.3. It was 2.1 two weeks ago and everything else looks good. They do not want to see me for 8 weeks!   I am still tired much of the time, but feel good when I am not, and still do not feel sick when I … Continue reading

04-17-13/Scare Only – Crisis Averted

My biopsy last week went fine. Really the worst part is waiting the 3 hours after in clinic with a weight on the kidney to keep it from bleeding.   The results are also good. No rejection and lowering the Prograf did the trick. My creatinine is back to 2.0!!!!!   It looks like, even … Continue reading

3-12-13/BK Dropping

I heard from Yale late last week, but didn’t have time to write. Frankly, I have been pushing pretty hard (at work mostly) and my body is pushing back. I slept most of Friday, Saturday, and Sunday, and returned to the living today.   The BK Virus dropped substantially last month, after only a small … Continue reading

3-1-13/3 months of Stability!!!!!!!

I was at Yale today and my creatinine was 2.4. It has been around 2.3 since I started the Lisinopril for blood pressure control and kidney longevity.   That marks three months of basically stable kidney function! I am really beginning to feel there is light at the end of the tunnel. I am still … Continue reading

10-16-12/Not Ready For Prime Time

Overall, I have good news. I am feeling pretty good and my creatinine is stable (last reading was 1.8 – last week). I haven’t heard anything new on BK Virus – not even sure if they tested last week, so I might have to wait until the next blood test.   However, and this is … Continue reading

7-16-12/BK Virus

Today was supposed to be a day I didn’t hear from Yale. I had clinic scheduled for Thursday and my cystoscopy got moved to Wednesday. So other than the delight of waiting for that procedure on Wednesday things were supposed to be low-key.   Not so much. Clinic called today and left a message as … Continue reading

7-2-12/Enough Already

Okay, they said there would be bumps in the roads. I get that. I am, however, ¬†getting sick of potholes that prevent me from reaching my destination – some consistent level of health. Not even great health – just consistent health. My standards are lowering by the day.   I was back at Yale today … Continue reading

6-21-12/Overwhelmed – Don’t underestimate the mental drain

Today was supposed to be the surgery. I am glad it got moved so both top surgeons could be on the case, but part of me just wants this over with.   I am so overwhelmed from this hanging over me and knowing that my life – in a best case scenario – cannot return … Continue reading