8-11-13/Stable, but still tired/Organ Donation/Medications

A few things in today’s post.   First, I am stable at a Creatinine of 2.1. That’s the good news. The bad news is that I am still stable at a Creatinine of 2.1, which equals an eGFR of 39. ¬†For those outside of the know, that means my one good kidney is operating at … Continue reading

7-8-13/Living with a reduced immune system

I am not scheduled to go to Yale for another 4 weeks, but I thought I would update on some things.   Living with a reduced immune system has its cons.   First, I have been getting head colds frequently this spring. It seems like every 3-4 weeks, I am coming down with something. Nothing … Continue reading

5-10-13/Hospital Again, But Things Okay

I spent two days last week in the hospital with a 103F fever. They pumped me full of fluids and everything worked out okay. Just painful and scary for a while.   I woke up with chills and a fever at 4AM and called the Yale hotline. They said to come right to the ER … Continue reading

04-17-13/Scare Only – Crisis Averted

My biopsy last week went fine. Really the worst part is waiting the 3 hours after in clinic with a weight on the kidney to keep it from bleeding.   The results are also good. No rejection and lowering the Prograf did the trick. My creatinine is back to 2.0!!!!!   It looks like, even … Continue reading

3-12-13/BK Dropping

I heard from Yale late last week, but didn’t have time to write. Frankly, I have been pushing pretty hard (at work mostly) and my body is pushing back. I slept most of Friday, Saturday, and Sunday, and returned to the living today.   The BK Virus dropped substantially last month, after only a small … Continue reading

3-1-13/3 months of Stability!!!!!!!

I was at Yale today and my creatinine was 2.4. It has been around 2.3 since I started the Lisinopril for blood pressure control and kidney longevity.   That marks three months of basically stable kidney function! I am really beginning to feel there is light at the end of the tunnel. I am still … Continue reading

12-31-12/A New Year with a New Kidney

Reflecting on 2012, it had to be one of the longest years of my life.   In April was the kidney transplant, June the ureter revision, followed by continued turmoil as my body, my family, and I, adjusted to having a new organ, new meds, and a new lease on life.   It was tough … Continue reading

11-6-12/BK Virus Getting Better, but In Rejection Again

First, the good news. The BK Virus has dropped about 30% in my blood and is not in my kidney.   Also good news: We survived Sandy. No power or heat or running water for 5+ days, but we did better than many. A generator is en-route as I never want to do this again … Continue reading

9-18-12/No More IVIG For Me!

I had my second IVIG treatment this past Thursday. Yale gave me 1/2 the dose, benadryl, tylenol, and cortisone. I was supposed to get the second 1/2 of the dose the following day. Of course, Friday I woke up with a fever and chills – again! I thought, “here we go again!” Luckily the fever … Continue reading

9-7-12/Stable Creatinine!

I was at Yale yesterday and things went well. My creatinine is stable at 1.6-1.7 – it read 1.7 yesterday. That’s two tests in a row at the lowest I have been out of the hospital post-transplant. My white blood cell count is basically back to normal. They lowered the prednisone again, and I will … Continue reading