1-17-13/Doing Okay

I haven’t really had much to say, but my sister has been bugging me to update.   I joined weight watchers online two weeks ago, took a week to transition (but still lost weight), and am now in the full swing of things. I am cooking most nights; either grilling lean meat, or making a … Continue reading

7-31-12/Kidney Biopsy

Alfred Hitchcock used to say, “the anticipation of the bang is worse than the bang itself.” He made a living off that premise, and I lost a lot of sleep last night over the anticipation of the biopsy today.   I have to admit, it was pretty benign. Given everything I have been through, I … Continue reading

7-18-12/Cystoscopy #2

The stent came out today via cystoscopy. It wasn’t as bad as last time because I knew what to expect.   As I’ve said before – it’s uncomfortable for the duration, but only really painful for 2-4 seconds. During that time it’s like someone is standing on your bladder.   This time it took 2+ … Continue reading

7-12-12/3 months & Staples Out

Today marks the 3 month anniversary of the transplant surgery. What a bumpy road!   It feels like much longer as the struggles have been great.   On the upside – all 49 staples came out of my abdomen today. It was a dramatic turnaround – the antibiotics helped me avoid an infection and actually … Continue reading

7-9-12/Stable?

I was at Yale this morning and things appear to be stable at the moment. Creatinine was 2.1 – statistically the same as last time – and the same it’s been for over a week. Not a great creatinine reading, but it’s stable.   They did an ultrasound and that showed no fluid in the … Continue reading

7-8-12/Lyrics

So here I am at 3AM – uncomfortable and unable to sleep.   The downside to sleeping as much as possible to try to escape the pain/depression/anxiety, is that it can catch up to you. Fast forward to tonight. Can’t sleep. Restless, tossing, turning, and doing something I love, listening to music.   I haven’t … Continue reading

7-3-12/You (likely) Don’t Know How Hard This Is

I posted the below entry on my “Post-Transplant Feelings” page. However, thought it was an appropriate entry for today.    I am very unhappy with how I feel and how others are handling me at the moment. Someone told me today that I least that “didn’t take my sense of humor.” I responded with “not … Continue reading

7-2-12/Enough Already

Okay, they said there would be bumps in the roads. I get that. I am, however,  getting sick of potholes that prevent me from reaching my destination – some consistent level of health. Not even great health – just consistent health. My standards are lowering by the day.   I was back at Yale today … Continue reading

6-30-2012/Home

I came home from the hospital this afternoon and proceeded to sleep the day away. Hospitals are not the best places to rest as they are always talking to/sticking/poking/pulling, etc on you. You might sleep 10 hours, but never in a row.   I am still in a lot of pain, but the tramidol is … Continue reading

6-29-12/Crappy Day

Well, Friday was pretty crappy. They took out the catheter and the drainage tube. Although both are a relief, neither are pleasant experiencs. Frankly, the drainage tube is much worse. I almsot kicked the doctor who took it out. It’s not really painful as much as REALLY uncomfortable. It feels like your body is being … Continue reading