9-4-12/Vow Renewal – A Fresh Start

Sunday I renewed my wedding vows with my wife of 5 years, Maria.   It was a wonderful day and the emphasis was on how much we have been through and how bright the future is.   In many ways, it was really a fresh start for both of us. I have been feeling pretty … Continue reading

8-1-12/Bad News

One of the nephrologists at Yale called today. It’s never good when the doctor calls instead of one of the nurses.   There is already damage to my new kidney. They know I have BK Virus, but it is unclear whether the damage is directly related to that alone, however.   The thought is that … Continue reading

7-24-12/Ureter Good, Creatinine High, and Bravery

Things at Yale went good and so/so.   The ultrasound was good, so it appears that the Ureter Revision was a success. Thank G-D. However, my creatinine is still high – 2.3 now. They want to give me a “vacation from Yale” for two weeks, but unless the creatinine is substantially better, have a biopsy … Continue reading

7-20-12/Hope and Clarification & Life Expectancy

I had an ultrasound at Yale today and it looked pretty good. They want to repeat Tuesday, but if that looks unchanged, then we can celebrate. This seems to imply that the second surgery (the ureter revision) was a success, making the transplant a success as well.   My creatinine is 2.2 – the highest … Continue reading

7-16-12/BK Virus

Today was supposed to be a day I didn’t hear from Yale. I had clinic scheduled for Thursday and my cystoscopy got moved to Wednesday. So other than the delight of waiting for that procedure on Wednesday things were supposed to be low-key.   Not so much. Clinic called today and left a message as … Continue reading

7-12-12/3 months & Staples Out

Today marks the 3 month anniversary of the transplant surgery. What a bumpy road!   It feels like much longer as the struggles have been great.   On the upside – all 49 staples came out of my abdomen today. It was a dramatic turnaround – the antibiotics helped me avoid an infection and actually … Continue reading

7-8-12/Lyrics

So here I am at 3AM – uncomfortable and unable to sleep.   The downside to sleeping as much as possible to try to escape the pain/depression/anxiety, is that it can catch up to you. Fast forward to tonight. Can’t sleep. Restless, tossing, turning, and doing something I love, listening to music.   I haven’t … Continue reading