8-11-13/Stable, but still tired/Organ Donation/Medications

A few things in today’s post.   First, I am stable at a Creatinine of 2.1. That’s the good news. The bad news is that I am still stable at a Creatinine of 2.1, which equals an eGFR of 39.  For those outside of the know, that means my one good kidney is operating at … Continue reading

9-7-12/Stable Creatinine!

I was at Yale yesterday and things went well. My creatinine is stable at 1.6-1.7 – it read 1.7 yesterday. That’s two tests in a row at the lowest I have been out of the hospital post-transplant. My white blood cell count is basically back to normal. They lowered the prednisone again, and I will … Continue reading

7-17-12/BK Virus pt. 2

I spoke to Yale today and feel a little better. First, they moved my clinic appointment to Friday. The stent comes out tomorrow, so by the end of the week we should know how the ureter revision went.   We also spoke about the BK Virus. It sounds like two medications (prograf and prednisone) is … Continue reading

7-16-12/BK Virus

Today was supposed to be a day I didn’t hear from Yale. I had clinic scheduled for Thursday and my cystoscopy got moved to Wednesday. So other than the delight of waiting for that procedure on Wednesday things were supposed to be low-key.   Not so much. Clinic called today and left a message as … Continue reading

7-12-12/3 months & Staples Out

Today marks the 3 month anniversary of the transplant surgery. What a bumpy road!   It feels like much longer as the struggles have been great.   On the upside – all 49 staples came out of my abdomen today. It was a dramatic turnaround – the antibiotics helped me avoid an infection and actually … Continue reading

7-9-12/Stable?

I was at Yale this morning and things appear to be stable at the moment. Creatinine was 2.1 – statistically the same as last time – and the same it’s been for over a week. Not a great creatinine reading, but it’s stable.   They did an ultrasound and that showed no fluid in the … Continue reading

7-5-12/Some Explanations

I was at Yale today and they have an explanation for my lack of bladder control – something I didn’t mention earlier. It’s not horrible, but it is definitely annoying. They think the stent that was put in to help the ureter and bladder heal has shifted. This shift puts pressure on the bladder and … Continue reading

6-29-12/Crappy Day

Well, Friday was pretty crappy. They took out the catheter and the drainage tube. Although both are a relief, neither are pleasant experiencs. Frankly, the drainage tube is much worse. I almsot kicked the doctor who took it out. It’s not really painful as much as REALLY uncomfortable. It feels like your body is being … Continue reading

6-27-12/Surgery A Success But Pain Bad

According to both surgeons, the surgery went very well. Things had to be moved around a little, but basically, was in range with what they expect. They were pleased.   I am relieved. Part of the concern going in was whether the ureter revision would work. We won’t know if we are totally out of the … Continue reading

6-25-12/Surgery Tomorrow

I don’t really know what to say. I spent most of today staring out into space and trying to rationalize this – or at least, make peace with it.   No such luck.   I will try to keep everyone up to date, but don’t expect anything for a few days, at least.   Thank … Continue reading