1-24-13/Stable

I was at Yale on 1-22-13 and my creatinine was 2.3. I am now on Lisinopril (for about 2-3 months now), for blood pressure control, but mostly because it is believed to extend the life of the new kidney. They are not sure why, but it seems to have a protective effect on kidneys. I … Continue reading

1-17-13/Doing Okay

I haven’t really had much to say, but my sister has been bugging me to update.   I joined weight watchers online two weeks ago, took a week to transition (but still lost weight), and am now in the full swing of things. I am cooking most nights; either grilling lean meat, or making a … Continue reading

12-31-12/A New Year with a New Kidney

Reflecting on 2012, it had to be one of the longest years of my life.   In April was the kidney transplant, June the ureter revision, followed by continued turmoil as my body, my family, and I, adjusted to having a new organ, new meds, and a new lease on life.   It was tough … Continue reading

12-14-12/Back Home….What/Perspective

Well, I am back home.   Apparently, very rare, but of course the high creatinine reading was due to “lab error.” There is no other way to explain how it dropped back to 2.1 today with no intervention. Additionally, my kidney looked good on preliminary viewing post-biopsy.   I would normally be a little upset … Continue reading

12-13-12/Back in Hospital

I went to Yale today for a semi-routine visit – although there was some concern I “might” be in rejection.   My creatinine came back at 3.4! Needless to say they did an immediate biopsy (with results – at least preliminary results – coming tomorrow) and admitted me.   So I am in the hospital … Continue reading

12-12-12 – May be in Rejection Again/Still Feel Crappy

Well, I haven’t written in a while. November was tough. Steroid treatments for the rejection were difficult, as usual. I had trouble sleeping and was wired at times, exhausted others, and gained more weight. Thanksgiving is tough because it is the anniversary of my father’s death. It’s been 7 years now. I can’t believe it. … Continue reading

11-6-12/BK Virus Getting Better, but In Rejection Again

First, the good news. The BK Virus has dropped about 30% in my blood and is not in my kidney.   Also good news: We survived Sandy. No power or heat or running water for 5+ days, but we did better than many. A generator is en-route as I never want to do this again … Continue reading

10-16-12/Not Ready For Prime Time

Overall, I have good news. I am feeling pretty good and my creatinine is stable (last reading was 1.8 – last week). I haven’t heard anything new on BK Virus – not even sure if they tested last week, so I might have to wait until the next blood test.   However, and this is … Continue reading

10-1-12 – Creatinine Creeping Up/Back to Normalcy

Last week I had my creatine checked and it was 1.9.   No need to worry yet, but we are going to watch very carefully to make sure it doesn’t creep up more, and if it does, be ready to act.   I am pretty much back to work full-time and feel pretty good. When … Continue reading

9-18-12/No More IVIG For Me!

I had my second IVIG treatment this past Thursday. Yale gave me 1/2 the dose, benadryl, tylenol, and cortisone. I was supposed to get the second 1/2 of the dose the following day. Of course, Friday I woke up with a fever and chills – again! I thought, “here we go again!” Luckily the fever … Continue reading