Friend In Need of Kidney

First off, everything is still stable with me. Otherwise, nothing much to report there. Things are status quo.   Secondly, and much more importantly, I have a friend from my temple, who is at 16% kidney function and is looking for a live donor. His brother in law was going to donate, but they just … Continue reading

8-11-13/Stable, but still tired/Organ Donation/Medications

A few things in today’s post.   First, I am stable at a Creatinine of 2.1. That’s the good news. The bad news is that I am still stable at a Creatinine of 2.1, which equals an eGFR of 39. ¬†For those outside of the know, that means my one good kidney is operating at … Continue reading

7-8-13/Living with a reduced immune system

I am not scheduled to go to Yale for another 4 weeks, but I thought I would update on some things.   Living with a reduced immune system has its cons.   First, I have been getting head colds frequently this spring. It seems like every 3-4 weeks, I am coming down with something. Nothing … Continue reading

6-4-13/Still Stable

I was at Yale yesterday and my creatinine was 2.3. It was 2.1 two weeks ago and everything else looks good. They do not want to see me for 8 weeks!   I am still tired much of the time, but feel good when I am not, and still do not feel sick when I … Continue reading

5-10-13/Hospital Again, But Things Okay

I spent two days last week in the hospital with a 103F fever. They pumped me full of fluids and everything worked out okay. Just painful and scary for a while.   I woke up with chills and a fever at 4AM and called the Yale hotline. They said to come right to the ER … Continue reading

04-17-13/Scare Only – Crisis Averted

My biopsy last week went fine. Really the worst part is waiting the 3 hours after in clinic with a weight on the kidney to keep it from bleeding.   The results are also good. No rejection and lowering the Prograf did the trick. My creatinine is back to 2.0!!!!!   It looks like, even … Continue reading

3-12-13/BK Dropping

I heard from Yale late last week, but didn’t have time to write. Frankly, I have been pushing pretty hard (at work mostly) and my body is pushing back. I slept most of Friday, Saturday, and Sunday, and returned to the living today.   The BK Virus dropped substantially last month, after only a small … Continue reading

3-1-13/3 months of Stability!!!!!!!

I was at Yale today and my creatinine was 2.4. It has been around 2.3 since I started the Lisinopril for blood pressure control and kidney longevity.   That marks three months of basically stable kidney function! I am really beginning to feel there is light at the end of the tunnel. I am still … Continue reading

2-19-13/Hanging In

Things have been pretty quiet – a good thing.   I have been feeling okay, with a few bad days here and there. The good days are pretty good, and the bad are mostly just days were I can’t get going and feel super exhausted. I have not had the stomach, head, and other ancillary … Continue reading

1-24-13/Stable

I was at Yale on 1-22-13 and my creatinine was 2.3. I am now on Lisinopril (for about 2-3 months now), for blood pressure control, but mostly because it is believed to extend the life of the new kidney. They are not sure why, but it seems to have a protective effect on kidneys. I … Continue reading