I was at Yale on 1-22-13 and my creatinine was 2.3. I am now on Lisinopril (for about 2-3 months now), for blood pressure control, but mostly because it is believed to extend the life of the new kidney. They are not sure why, but it seems to have a protective effect on kidneys. I … Continue reading

7-16-12/BK Virus

Today was supposed to be a day I didn’t hear from Yale. I had clinic scheduled for Thursday and my cystoscopy got moved to Wednesday. So other than the delight of waiting for that procedure on Wednesday things were supposed to be low-key.   Not so much. Clinic called today and left a message as … Continue reading

7-12-12/3 months & Staples Out

Today marks the 3 month anniversary of the transplant surgery. What a bumpy road!   It feels like much longer as the struggles have been great.   On the upside – all 49 staples came out of my abdomen today. It was a dramatic turnaround – the antibiotics helped me avoid an infection and actually … Continue reading

7-3-12/You (likely) Don’t Know How Hard This Is

I posted the below entry on my “Post-Transplant Feelings” page. However, thought it was an appropriate entry for today.    I am very unhappy with how I feel and how others are handling me at the moment. Someone told me today that I least that “didn’t take my sense of humor.” I responded with “not … Continue reading

7-2-12/Enough Already

Okay, they said there would be bumps in the roads. I get that. I am, however,  getting sick of potholes that prevent me from reaching my destination – some consistent level of health. Not even great health – just consistent health. My standards are lowering by the day.   I was back at Yale today … Continue reading

6-27-12/Surgery A Success But Pain Bad

According to both surgeons, the surgery went very well. Things had to be moved around a little, but basically, was in range with what they expect. They were pleased.   I am relieved. Part of the concern going in was whether the ureter revision would work. We won’t know if we are totally out of the … Continue reading

6-23-12/I Can’t Do This Again

I am really struggling. I don’t know if I can muster the strength to go through this AGAIN!   I know I don’t have a choice – and everyone keeps reminding me that – as if it helps. However, in many ways, I feel worse than going into the last surgery. Physically better overall, but … Continue reading

6-21-12/Overwhelmed – Don’t underestimate the mental drain

Today was supposed to be the surgery. I am glad it got moved so both top surgeons could be on the case, but part of me just wants this over with.   I am so overwhelmed from this hanging over me and knowing that my life – in a best case scenario – cannot return … Continue reading

6-19-12/Surgery Moved

Yale wanted both top transplant surgeons to perform the ureter relocation surgery. That would be both the surgeon who operated on me originally, as well as the surgeon who operated on my mother.   They thought they could both be together this Thursday, but were unable to make it happen. Therefore, the surgery is now … Continue reading


I have tried to stay positive and when possible, laugh about the situation. This weekend, I hit a wall. I am deeply depressed.   Do I know it could be worse? Yes. Do I know others have it worse? Yes. Does that matter right now? Not really.   I can barely get out of bed … Continue reading