9-18-12/No More IVIG For Me!

I had my second IVIG treatment this past Thursday. Yale gave me 1/2 the dose, benadryl, tylenol, and cortisone. I was supposed to get the second 1/2 of the dose the following day. Of course, Friday I woke up with a fever and chills – again! I thought, “here we go again!” Luckily the fever … Continue reading

9-7-12/Stable Creatinine!

I was at Yale yesterday and things went well. My creatinine is stable at 1.6-1.7 – it read 1.7 yesterday. That’s two tests in a row at the lowest I have been out of the hospital post-transplant. My white blood cell count is basically back to normal. They lowered the prednisone again, and I will … Continue reading

9-4-12/Vow Renewal – A Fresh Start

Sunday I renewed my wedding vows with my wife of 5 years, Maria.   It was a wonderful day and the emphasis was on how much we have been through and how bright the future is.   In many ways, it was really a fresh start for both of us. I have been feeling pretty … Continue reading

8-23-12/Good News, AKA Fast Turnaround

Yale went as well as can be expected today.   Creatine is stable around 2.0. My white blood count is 5X what it was when I went into the hospital on Friday at 2.4K (vs. 500). NO MORE MASKS! I can also go out in public! Awesome.   My wife and I are renewing our … Continue reading

8-21-12/Home, But Still, Uncertainty Remains

I am home!   My white blood count was stable around 1K, but my creatinine was back down to 1.9. My blood sugar is still high – but mostly very high 6-10 hours after Prednisone – still a high dose. That seems to indicate that is the likely culprit.   They decided better to quarantine … Continue reading

8-20-12/Part 2 – Good News!

I posted the following earlier today (new blog entry to follow): 8-20-12/Bad News and Another Biopsy Yesterday (Sunday) was hectic. My white blood count was up to 700 from 500, but still very low. Additionally, my neutrophils were .2, versus a healthy 1.0+. These are a subset of white blood cells. The only good news … Continue reading

8-09-12/Good News on Rejection & BK Virus Treatment Options

I needed a good visit at Yale today. Things have seemed bleak and I have been very down. So much so I haven’t even bothered posting. I also have been having side effects from the steroids (high blood pressure, trouble sleeping, agitation, etc.). In fact, I haven’t slept in over 30 hours at this point … Continue reading