12-12-12 – May be in Rejection Again/Still Feel Crappy

Well, I haven’t written in a while. November was tough. Steroid treatments for the rejection were difficult, as usual. I had trouble sleeping and was wired at times, exhausted others, and gained more weight. Thanksgiving is tough because it is the anniversary of my father’s death. It’s been 7 years now. I can’t believe it. … Continue reading

9-4-12/Vow Renewal – A Fresh Start

Sunday I renewed my wedding vows with my wife of 5 years, Maria.   It was a wonderful day and the emphasis was on how much we have been through and how bright the future is.   In many ways, it was really a fresh start for both of us. I have been feeling pretty … Continue reading

7-3-12/You (likely) Don’t Know How Hard This Is

I posted the below entry on my “Post-Transplant Feelings” page. However, thought it was an appropriate entry for today.    I am very unhappy with how I feel and how others are handling me at the moment. Someone told me today that I least that “didn’t take my sense of humor.” I responded with “not … Continue reading

6-29-12/Crappy Day

Well, Friday was pretty crappy. They took out the catheter and the drainage tube. Although both are a relief, neither are pleasant experiencs. Frankly, the drainage tube is much worse. I almsot kicked the doctor who took it out. It’s not really painful as much as REALLY uncomfortable. It feels like your body is being … Continue reading

6-23-12/I Can’t Do This Again

I am really struggling. I don’t know if I can muster the strength to go through this AGAIN!   I know I don’t have a choice – and everyone keeps reminding me that – as if it helps. However, in many ways, I feel worse than going into the last surgery. Physically better overall, but … Continue reading

6-21-12/Overwhelmed – Don’t underestimate the mental drain

Today was supposed to be the surgery. I am glad it got moved so both top surgeons could be on the case, but part of me just wants this over with.   I am so overwhelmed from this hanging over me and knowing that my life – in a best case scenario – cannot return … Continue reading

6-19-12/Surgery Moved

Yale wanted both top transplant surgeons to perform the ureter relocation surgery. That would be both the surgeon who operated on me originally, as well as the surgeon who operated on my mother.   They thought they could both be together this Thursday, but were unable to make it happen. Therefore, the surgery is now … Continue reading

6-15-12/Surgery Next Week

When I want into transplant April 12th, I wore a shirt that said, “Honey Badger Don’t Care.” Well, now the Honey Badger does care! I am having surgery next Thursday, June 21.   The surgeon asked what I was doing next thursday, and I told him that suddenly, my schedule had cleared up.   The … Continue reading

5-21-12/When Is a Damaged Ureter a Good Thing?

I was at Yale today and have potentially  good news.   First, they took off my urine bag and I can pee like a human being again – via genitals instead of tube in kidney!   Secondly, there may be reason for optimism.   My surgeon came down to clinic to speak with me today. … Continue reading

5-15-12/Creatnine Stabilizing?

I was at Yale yesterday. My creatinine is down to 2.0, from 2.1 on Thursday. Better, but still not great. In the meantime, my Prograf levels are still high – so they lowered my Prograf dosage (again) as that can explain the elevated creatinine. Since things had improved, even slightly, they did not do a … Continue reading