11-6-12/BK Virus Getting Better, but In Rejection Again

First, the good news. The BK Virus has dropped about 30% in my blood and is not in my kidney.   Also good news: We survived Sandy. No power or heat or running water for 5+ days, but we did better than many. A generator is en-route as I never want to do this again … Continue reading

8-23-12/Good News, AKA Fast Turnaround

Yale went as well as can be expected today.   Creatine is stable around 2.0. My white blood count is 5X what it was when I went into the hospital on Friday at 2.4K (vs. 500). NO MORE MASKS! I can also go out in public! Awesome.   My wife and I are renewing our … Continue reading

8-20-12/Bad News and Another Biopsy

Yesterday (Sunday) was hectic.   My white blood count was up to 700 from 500, but still very low. Additionally, my neutrophils were .2, versus a healthy 1.0+. These are a subset of white blood cells. The only good news here is that the blood doctor (hematologist) felt that for the most part, everything else looked … Continue reading

8-19-12/In Hospital

I haven’t written in sometime. First, there was little to report. Now, sadly, there is much to report. I started my IVIG treatments on Thursday. Everything seemed to go fine with the treatment, but by 9PM that night I had chills and a severe headache. I ended up developing a 103 fever over the night … Continue reading