8-11-13/Stable, but still tired/Organ Donation/Medications

A few things in today’s post.   First, I am stable at a Creatinine of 2.1. That’s the good news. The bad news is that I am still stable at a Creatinine of 2.1, which equals an eGFR of 39. ¬†For those outside of the know, that means my one good kidney is operating at … Continue reading

6-4-13/Still Stable

I was at Yale yesterday and my creatinine was 2.3. It was 2.1 two weeks ago and everything else looks good. They do not want to see me for 8 weeks!   I am still tired much of the time, but feel good when I am not, and still do not feel sick when I … Continue reading

5-10-13/Hospital Again, But Things Okay

I spent two days last week in the hospital with a 103F fever. They pumped me full of fluids and everything worked out okay. Just painful and scary for a while.   I woke up with chills and a fever at 4AM and called the Yale hotline. They said to come right to the ER … Continue reading

04-17-13/Scare Only – Crisis Averted

My biopsy last week went fine. Really the worst part is waiting the 3 hours after in clinic with a weight on the kidney to keep it from bleeding.   The results are also good. No rejection and lowering the Prograf did the trick. My creatinine is back to 2.0!!!!!   It looks like, even … Continue reading

3-12-13/BK Dropping

I heard from Yale late last week, but didn’t have time to write. Frankly, I have been pushing pretty hard (at work mostly) and my body is pushing back. I slept most of Friday, Saturday, and Sunday, and returned to the living today.   The BK Virus dropped substantially last month, after only a small … Continue reading

3-1-13/3 months of Stability!!!!!!!

I was at Yale today and my creatinine was 2.4. It has been around 2.3 since I started the Lisinopril for blood pressure control and kidney longevity.   That marks three months of basically stable kidney function! I am really beginning to feel there is light at the end of the tunnel. I am still … Continue reading

1-24-13/Stable

I was at Yale on 1-22-13 and my creatinine was 2.3. I am now on Lisinopril (for about 2-3 months now), for blood pressure control, but mostly because it is believed to extend the life of the new kidney. They are not sure why, but it seems to have a protective effect on kidneys. I … Continue reading

1-17-13/Doing Okay

I haven’t really had much to say, but my sister has been bugging me to update.   I joined weight watchers online two weeks ago, took a week to transition (but still lost weight), and am now in the full swing of things. I am cooking most nights; either grilling lean meat, or making a … Continue reading

12-14-12/Back Home….What/Perspective

Well, I am back home.   Apparently, very rare, but of course the high creatinine reading was due to “lab error.” There is no other way to explain how it dropped back to 2.1 today with no intervention. Additionally, my kidney looked good on preliminary viewing post-biopsy.   I would normally be a little upset … Continue reading

12-12-12 – May be in Rejection Again/Still Feel Crappy

Well, I haven’t written in a while. November was tough. Steroid treatments for the rejection were difficult, as usual. I had trouble sleeping and was wired at times, exhausted others, and gained more weight. Thanksgiving is tough because it is the anniversary of my father’s death. It’s been 7 years now. I can’t believe it. … Continue reading