5-10-13/Hospital Again, But Things Okay

I spent two days last week in the hospital with a 103F fever. They pumped me full of fluids and everything worked out okay. Just painful and scary for a while.   I woke up with chills and a fever at 4AM and called the Yale hotline. They said to come right to the ER … Continue reading

04-17-13/Scare Only – Crisis Averted

My biopsy last week went fine. Really the worst part is waiting the 3 hours after in clinic with a weight on the kidney to keep it from bleeding.   The results are also good. No rejection and lowering the Prograf did the trick. My creatinine is back to 2.0!!!!!   It looks like, even … Continue reading

12-13-12/Back in Hospital

I went to Yale today for a semi-routine visit – although there was some concern I “might” be in rejection.   My creatinine came back at 3.4! Needless to say they did an immediate biopsy (with results – at least preliminary results – coming tomorrow) and admitted me.   So I am in the hospital … Continue reading

11-6-12/BK Virus Getting Better, but In Rejection Again

First, the good news. The BK Virus has dropped about 30% in my blood and is not in my kidney.   Also good news: We survived Sandy. No power or heat or running water for 5+ days, but we did better than many. A generator is en-route as I never want to do this again … Continue reading

8-23-12/Good News, AKA Fast Turnaround

Yale went as well as can be expected today.   Creatine is stable around 2.0. My white blood count is 5X what it was when I went into the hospital on Friday at 2.4K (vs. 500). NO MORE MASKS! I can also go out in public! Awesome.   My wife and I are renewing our … Continue reading

8-20-12/Part 2 – Good News!

I posted the following earlier today (new blog entry to follow): 8-20-12/Bad News and Another Biopsy Yesterday (Sunday) was hectic. My white blood count was up to 700 from 500, but still very low. Additionally, my neutrophils were .2, versus a healthy 1.0+. These are a subset of white blood cells. The only good news … Continue reading

8-20-12/Bad News and Another Biopsy

Yesterday (Sunday) was hectic.   My white blood count was up to 700 from 500, but still very low. Additionally, my neutrophils were .2, versus a healthy 1.0+. These are a subset of white blood cells. The only good news here is that the blood doctor (hematologist) felt that for the most part, everything else looked … Continue reading

8-2-12/Better News

I started steroid treatments today – I am in rejection and I do have BK Virus in my kidney.   However, it is a best of the worst case scenario right now.   First, they believe my creatinine is high because of inflammation in the kidney – not necessarily, or even likely, permanent damage. Therefore, … Continue reading

8-1-12/Bad News

One of the nephrologists at Yale called today. It’s never good when the doctor calls instead of one of the nurses.   There is already damage to my new kidney. They know I have BK Virus, but it is unclear whether the damage is directly related to that alone, however.   The thought is that … Continue reading

7-31-12/Kidney Biopsy

Alfred Hitchcock used to say, “the anticipation of the bang is worse than the bang itself.” He made a living off that premise, and I lost a lot of sleep last night over the anticipation of the biopsy today.   I have to admit, it was pretty benign. Given everything I have been through, I … Continue reading