2-19-13/Hanging In

Things have been pretty quiet – a good thing.   I have been feeling okay, with a few bad days here and there. The good days are pretty good, and the bad are mostly just days were I can’t get going and feel super exhausted. I have not had the stomach, head, and other ancillary … Continue reading

12-31-12/A New Year with a New Kidney

Reflecting on 2012, it had to be one of the longest years of my life.   In April was the kidney transplant, June the ureter revision, followed by continued turmoil as my body, my family, and I, adjusted to having a new organ, new meds, and a new lease on life.   It was tough … Continue reading

8-21-12/Home, But Still, Uncertainty Remains

I am home!   My white blood count was stable around 1K, but my creatinine was back down to 1.9. My blood sugar is still high – but mostly very high 6-10 hours after Prednisone – still a high dose. That seems to indicate that is the likely culprit.   They decided better to quarantine … Continue reading

7-12-12/3 months & Staples Out

Today marks the 3 month anniversary of the transplant surgery. What a bumpy road!   It feels like much longer as the struggles have been great.   On the upside – all 49 staples came out of my abdomen today. It was a dramatic turnaround – the antibiotics helped me avoid an infection and actually … Continue reading

7-8-12/Lyrics

So here I am at 3AM – uncomfortable and unable to sleep.   The downside to sleeping as much as possible to try to escape the pain/depression/anxiety, is that it can catch up to you. Fast forward to tonight. Can’t sleep. Restless, tossing, turning, and doing something I love, listening to music.   I haven’t … Continue reading

7-3-12/You (likely) Don’t Know How Hard This Is

I posted the below entry on my “Post-Transplant Feelings” page. However, thought it was an appropriate entry for today.    I am very unhappy with how I feel and how others are handling me at the moment. Someone told me today that I least that “didn’t take my sense of humor.” I responded with “not … Continue reading

6-27-12/Surgery A Success But Pain Bad

According to both surgeons, the surgery went very well. Things had to be moved around a little, but basically, was in range with what they expect. They were pleased.   I am relieved. Part of the concern going in was whether the ureter revision would work. We won’t know if we are totally out of the … Continue reading

6-23-12/I Can’t Do This Again

I am really struggling. I don’t know if I can muster the strength to go through this AGAIN!   I know I don’t have a choice – and everyone keeps reminding me that – as if it helps. However, in many ways, I feel worse than going into the last surgery. Physically better overall, but … Continue reading

6-21-12/Overwhelmed – Don’t underestimate the mental drain

Today was supposed to be the surgery. I am glad it got moved so both top surgeons could be on the case, but part of me just wants this over with.   I am so overwhelmed from this hanging over me and knowing that my life – in a best case scenario – cannot return … Continue reading

6-19-12/Surgery Moved

Yale wanted both top transplant surgeons to perform the ureter relocation surgery. That would be both the surgeon who operated on me originally, as well as the surgeon who operated on my mother.   They thought they could both be together this Thursday, but were unable to make it happen. Therefore, the surgery is now … Continue reading