04-17-13/Scare Only – Crisis Averted

My biopsy last week went fine. Really the worst part is waiting the 3 hours after in clinic with a weight on the kidney to keep it from bleeding.   The results are also good. No rejection and lowering the Prograf did the trick. My creatinine is back to 2.0!!!!!   It looks like, even … Continue reading

4-8-13/Good News & Bad News

First the good news. Friday marks one year since the transplant. I had a party last weekend to celebrate and many people came to share in the joy with me and Maria.    However, we may have celebrated a little too soon. I was at Yale on Friday and my creatinine was 2.5. Not crazy, … Continue reading

3-12-13/BK Dropping

I heard from Yale late last week, but didn’t have time to write. Frankly, I have been pushing pretty hard (at work mostly) and my body is pushing back. I slept most of Friday, Saturday, and Sunday, and returned to the living today.   The BK Virus dropped substantially last month, after only a small … Continue reading

3-1-13/3 months of Stability!!!!!!!

I was at Yale today and my creatinine was 2.4. It has been around 2.3 since I started the Lisinopril for blood pressure control and kidney longevity.   That marks three months of basically stable kidney function! I am really beginning to feel there is light at the end of the tunnel. I am still … Continue reading

2-19-13/Hanging In

Things have been pretty quiet – a good thing.   I have been feeling okay, with a few bad days here and there. The good days are pretty good, and the bad are mostly just days were I can’t get going and feel super exhausted. I have not had the stomach, head, and other ancillary … Continue reading

1-24-13/Stable

I was at Yale on 1-22-13 and my creatinine was 2.3. I am now on Lisinopril (for about 2-3 months now), for blood pressure control, but mostly because it is believed to extend the life of the new kidney. They are not sure why, but it seems to have a protective effect on kidneys. I … Continue reading

1-17-13/Doing Okay

I haven’t really had much to say, but my sister has been bugging me to update.   I joined weight watchers online two weeks ago, took a week to transition (but still lost weight), and am now in the full swing of things. I am cooking most nights; either grilling lean meat, or making a … Continue reading

12-31-12/A New Year with a New Kidney

Reflecting on 2012, it had to be one of the longest years of my life.   In April was the kidney transplant, June the ureter revision, followed by continued turmoil as my body, my family, and I, adjusted to having a new organ, new meds, and a new lease on life.   It was tough … Continue reading

12-14-12/Back Home….What/Perspective

Well, I am back home.   Apparently, very rare, but of course the high creatinine reading was due to “lab error.” There is no other way to explain how it dropped back to 2.1 today with no intervention. Additionally, my kidney looked good on preliminary viewing post-biopsy.   I would normally be a little upset … Continue reading

12-13-12/Back in Hospital

I went to Yale today for a semi-routine visit – although there was some concern I “might” be in rejection.   My creatinine came back at 3.4! Needless to say they did an immediate biopsy (with results – at least preliminary results – coming tomorrow) and admitted me.   So I am in the hospital … Continue reading