7-18-12/Cystoscopy #2

The stent came out today via cystoscopy. It wasn’t as bad as last time because I knew what to expect.   As I’ve said before – it’s uncomfortable for the duration, but only really painful for 2-4 seconds. During that time it’s like someone is standing on your bladder.   This time it took 2+ … Continue reading

7-17-12/BK Virus pt. 2

I spoke to Yale today and feel a little better. First, they moved my clinic appointment to Friday. The stent comes out tomorrow, so by the end of the week we should know how the ureter revision went.   We also spoke about the BK Virus. It sounds like two medications (prograf and prednisone) is … Continue reading

7-16-12/BK Virus

Today was supposed to be a day I didn’t hear from Yale. I had clinic scheduled for Thursday and my cystoscopy got moved to Wednesday. So other than the delight of waiting for that procedure on Wednesday things were supposed to be low-key.   Not so much. Clinic called today and left a message as … Continue reading

7-12-12/3 months & Staples Out

Today marks the 3 month anniversary of the transplant surgery. What a bumpy road!   It feels like much longer as the struggles have been great.   On the upside – all 49 staples came out of my abdomen today. It was a dramatic turnaround – the antibiotics helped me avoid an infection and actually … Continue reading

7-9-12/Stable?

I was at Yale this morning and things appear to be stable at the moment. Creatinine was 2.1 – statistically the same as last time – and the same it’s been for over a week. Not a great creatinine reading, but it’s stable.   They did an ultrasound and that showed no fluid in the … Continue reading

7-8-12/Lyrics

So here I am at 3AM – uncomfortable and unable to sleep.   The downside to sleeping as much as possible to try to escape the pain/depression/anxiety, is that it can catch up to you. Fast forward to tonight. Can’t sleep. Restless, tossing, turning, and doing something I love, listening to music.   I haven’t … Continue reading

7-5-12/Some Explanations

I was at Yale today and they have an explanation for my lack of bladder control – something I didn’t mention earlier. It’s not horrible, but it is definitely annoying. They think the stent that was put in to help the ureter and bladder heal has shifted. This shift puts pressure on the bladder and … Continue reading

7-3-12/You (likely) Don’t Know How Hard This Is

I posted the below entry on my “Post-Transplant Feelings” page. However, thought it was an appropriate entry for today.    I am very unhappy with how I feel and how others are handling me at the moment. Someone told me today that I least that “didn’t take my sense of humor.” I responded with “not … Continue reading

7-2-12/Enough Already

Okay, they said there would be bumps in the roads. I get that. I am, however,  getting sick of potholes that prevent me from reaching my destination – some consistent level of health. Not even great health – just consistent health. My standards are lowering by the day.   I was back at Yale today … Continue reading

6-30-2012/Home

I came home from the hospital this afternoon and proceeded to sleep the day away. Hospitals are not the best places to rest as they are always talking to/sticking/poking/pulling, etc on you. You might sleep 10 hours, but never in a row.   I am still in a lot of pain, but the tramidol is … Continue reading