10-16-12/Not Ready For Prime Time

Overall, I have good news. I am feeling pretty good and my creatinine is stable (last reading was 1.8 – last week). I haven’t heard anything new on BK Virus – not even sure if they tested last week, so I might have to wait until the next blood test.


However, and this is a big however, I am learning quickly that I have to build up my stamina, as I appear to have virtually none. I tried going back to work basically full-time and that worked for a few days – then I crashed! I ended up getting a cold and needed two weeks to recover from that. Now it seems that every time I put in a full day, I need a day or two to recuperate.


Friday I worked a full day and slept 1/2 of Saturday and was awake for about 3 hours on Sunday. Over a 40 hour period, I was awake about 5-6 hours!


Today I had planned to get up early and work, but I didn’t have the energy. Basically, when I push, I feel like I did before transplant; complete and utter exhaustion. The good news is that is not accompanied by headaches and stomach problems.


I am optimistic that if I pace myself I can regain my stamina and at least be 2X what I was energy wise before transplant, which is probably 70% of where I want to be.


It’s hard to gauge right now because I have also been depressed. This may sound funny, but not having major kidney problems and post-surgery complications is kind of a let down. Don’t get me wrong, I am glad things are going well now. However, the past 6 months have been all about surgery and post-surgery, another surgery, rejection, etc. You have to get yourself up to deal with those things. Now doing day to day stuff doesn’t supply the same kind of adrenaline.


It’s similar to a football team that plays great against good teams, but loses against poor teams. They rise to occasion when they have to, but have trouble psyching themselves up week to week.


It’s also kind of a let down because people aren’t calling or coming over regularly. I am just David again, not sick David. Again, relieved, but also I miss the attention a little.


I will try to write more in the coming weeks about how I am adjusting.

One Response to “10-16-12/Not Ready For Prime Time”
  1. Sam M says:

    I am still reading things here – and it is a little too far away to pop over and say hello! What you write above makes a lot of sense – both about how tiring the return to work is but also the decrease in the attention as you get better. With small steps, I hope things will continue to improve.

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