9-4-12/Vow Renewal – A Fresh Start

Sunday I renewed my wedding vows with my wife of 5 years, Maria.

 

It was a wonderful day and the emphasis was on how much we have been through and how bright the future is.

 

In many ways, it was really a fresh start for both of us. I have been feeling pretty good, aside from a few things – which I will address momentarily.

 

People talked about what an inspiration I am and we are as a couple. That was meaningful to us. I am glad my strength, and Maria’s strength, has inspired others. I wish we didn’t have to go through all this to do it, but I am happy we kept our chins up and stayed strong.

 

It was a wonderful day and I am hopeful that it really marks a new beginning for us both.

 

Regarding my health, I am doing okay. My creatinine seems stable (I am going back to Yale on Thursday for a normal checkup and to schedule another IVIG treatment for the BK virus) and I feel pretty good. I still have days where I am very tired, but they are fewer and far between. I have started doing light cardio and hope to start lifting weights again soon. I am about 10 pounds over my transplant weight and want to lose 20 in the next year. My prednisone dose is down to 15mg a day and getting lower each week, so my the food cravings are getting, and should continue to get better. I am also building some stamina and should be getting back into shape over the next month or two.

 

The only thing really bothering me at the moment is the shaking. My hands especially shake much from the Prograf, but it has been worse on the higher doses of steroids. I am optimistic that we can figure that out and that the lower doses of steroids help. I plant to discuss with Yale on Thursday.

 

I wanted to end with song lyrics that inspire me to take life by the horns and live every day.

 

This song, “The Dolphin’s Cry” by Live, talks about taking risks and living without fear. You only get the most out of life if you put in the same. “Life is like a shooting star, it doesn’t matter who you are, if you only run for cover, it’s just a waste of time.”

 

The way you’re bathed in light
reminds me of that night
god laid me down into your rose garden of trust
and I was swept away
with nothin’ left to say
some helpless fool
yeah I was lost in a swoon of peace
you’re all I need to find
so when the time is right
come to me sweetly, come to me
come to me

love will lead us, alright
love will lead us, she will lead us
can you hear the dolphin’s cry?
see the road rise up to meet us
it’s in the air we breathe tonight
love will lead us, she will lead us

oh yeah, we meet again
it’s like we never left
time in between was just a dream
did we leave this place?
this crazy fog surrounds me
you wrap your legs around me
all I can do to try and breathe
let me breathe so that I
so we can go together!

love will lead us, alright
love will lead us, she will lead us
can you hear the dolphin’s cry?
see the road rise up to meet us
it’s in the air we breathe tonight
love will lead us, she will lead us

life is like a shooting star
it don’t matter who you are
if you only run for cover, it’s just a waste of time
we are lost ’til we are found
this phoenix rises up from the ground
and all these wars are over

over
over
singin’ la da da, da da da
over
come to me
singin’ la da da da, da da da
come to me

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