8-28-12/Lowest Creatinine Yet!

Went to Yale for bloodwork today. My creatinine is down to 1.6!   That’s the lowest it has been since transplant. I’ll take it!   Furthermore, my mother had her 4 month post donation check up and she’s doing great. I am so relieved. With all the trouble I have had, I would be devastated … Continue reading

8-23-12/Good News, AKA Fast Turnaround

Yale went as well as can be expected today.   Creatine is stable around 2.0. My white blood count is 5X what it was when I went into the hospital on Friday at 2.4K (vs. 500). NO MORE MASKS! I can also go out in public! Awesome.   My wife and I are renewing our … Continue reading

8-21-12/Home, But Still, Uncertainty Remains

I am home!   My white blood count was stable around 1K, but my creatinine was back down to 1.9. My blood sugar is still high – but mostly very high 6-10 hours after Prednisone – still a high dose. That seems to indicate that is the likely culprit.   They decided better to quarantine … Continue reading

8-20-12/Part 2 – Good News!

I posted the following earlier today (new blog entry to follow): 8-20-12/Bad News and Another Biopsy Yesterday (Sunday) was hectic. My white blood count was up to 700 from 500, but still very low. Additionally, my neutrophils were .2, versus a healthy 1.0+. These are a subset of white blood cells. The only good news … Continue reading

8-20-12/Bad News and Another Biopsy

Yesterday (Sunday) was hectic.   My white blood count was up to 700 from 500, but still very low. Additionally, my neutrophils were .2, versus a healthy 1.0+. These are a subset of white blood cells. The only good news here is that the blood doctor (hematologist) felt that for the most part, everything else looked … Continue reading

8-19-12/In Hospital

I haven’t written in sometime. First, there was little to report. Now, sadly, there is much to report. I started my IVIG treatments on Thursday. Everything seemed to go fine with the treatment, but by 9PM that night I had chills and a severe headache. I ended up developing a 103 fever over the night … Continue reading

8-09-12/Good News on Rejection & BK Virus Treatment Options

I needed a good visit at Yale today. Things have seemed bleak and I have been very down. So much so I haven’t even bothered posting. I also have been having side effects from the steroids (high blood pressure, trouble sleeping, agitation, etc.). In fact, I haven’t slept in over 30 hours at this point … Continue reading

8-5-12/Hope for me and for others? Incision Pictures

I was at Yale Thursday, Friday, and Saturday, for massive steroid (prednisone) treatments. I will spend the next three weeks tapering off from 60MG a day down to 20mg a day. My previous maintenance dose was 5mg daily. The last three days I got 500mg daily through IV.   The steroids caused a fast heart … Continue reading

8-2-12/Better News

I started steroid treatments today – I am in rejection and I do have BK Virus in my kidney.   However, it is a best of the worst case scenario right now.   First, they believe my creatinine is high because of inflammation in the kidney – not necessarily, or even likely, permanent damage. Therefore, … Continue reading

8-1-12/Bad News

One of the nephrologists at Yale called today. It’s never good when the doctor calls instead of one of the nurses.   There is already damage to my new kidney. They know I have BK Virus, but it is unclear whether the damage is directly related to that alone, however.   The thought is that … Continue reading