6-30-2012/Home

I came home from the hospital this afternoon and proceeded to sleep the day away. Hospitals are not the best places to rest as they are always talking to/sticking/poking/pulling, etc on you. You might sleep 10 hours, but never in a row.   I am still in a lot of pain, but the tramidol is … Continue reading

6-29-12/Crappy Day

Well, Friday was pretty crappy. They took out the catheter and the drainage tube. Although both are a relief, neither are pleasant experiencs. Frankly, the drainage tube is much worse. I almsot kicked the doctor who took it out. It’s not really painful as much as REALLY uncomfortable. It feels like your body is being … Continue reading

6-27-12/Surgery A Success But Pain Bad

According to both surgeons, the surgery went very well. Things had to be┬ámoved around a little, but basically, was in range with what they expect. They were pleased.   I am relieved. Part of the concern going in was whether the ureter revision would work. We won’t know if we are totally out of the … Continue reading

6-25-12/Surgery Tomorrow

I don’t really know what to say. I spent most of today staring out into space and trying to rationalize this – or at least, make peace with it.   No such luck.   I will try to keep everyone up to date, but don’t expect anything for a few days, at least.   Thank … Continue reading

6-23-12/I Can’t Do This Again

I am really struggling. I don’t know if I can muster the strength to go through this AGAIN!   I know I don’t have a choice – and everyone keeps reminding me that – as if it helps. However, in many ways, I feel worse than going into the last surgery. Physically better overall, but … Continue reading

6-21-12/Overwhelmed – Don’t underestimate the mental drain

Today was supposed to be the surgery. I am glad it got moved so both top surgeons could be on the case, but part of me just wants this over with.   I am so overwhelmed from this hanging over me and knowing that my life – in a best case scenario – cannot return … Continue reading

6-19-12/Surgery Moved

Yale wanted both top transplant surgeons to perform the ureter relocation surgery. That would be both the surgeon who operated on me originally, as well as the surgeon who operated on my mother.   They thought they could both be together this Thursday, but were unable to make it happen. Therefore, the surgery is now … Continue reading

6-18-12/Depression

I have tried to stay positive and when possible, laugh about the situation. This weekend, I hit a wall. I am deeply depressed.   Do I know it could be worse? Yes. Do I know others have it worse? Yes. Does that matter right now? Not really.   I can barely get out of bed … Continue reading

6-15-12/Surgery Next Week

When I want into transplant April 12th, I wore a shirt that said, “Honey Badger Don’t Care.” Well, now the Honey Badger does care! I am having surgery next Thursday, June 21.   The surgeon asked what I was doing next thursday, and I told him that suddenly, my schedule had cleared up.   The … Continue reading

6-13-12/Looks Like a Second Surgery :(

I had my nephrostomy tube pulled back today and ureter still looks pretty bad.   I am meeting with the surgeon on Friday to almost definitely schedule my second major surgery in roughly two months. I am less than happy.   I don’t know what to say now except I am angry, scared, and upset … Continue reading