About this Blog

My name is David, and I have focal segmental glomerulosclerosis, or FSGS for short. It is a degenerative kidney disease I have been fighting since I was 23 – 9 years now. The doctor’s call the cause, “idiopathic,” meaning they have no idea what caused it in my case. Their best guess is a medication reaction.  I am due to be transplanted April 12th, 2012, and was bothered by the lack of information out there on the process of kidney transplantation.

The purpose of this blog is to document/chronicle my journey through kidney transplantation.

The idea is that people will be able to go into transplantation better aware of what to expect.

Further, I encourage, and hope, that others going through, or who have gone through, kidney, or any form of transplantation for that matter, share their stories and this becomes a resource for patients and medical institutions alike.

A little bit about me:

Kidney disease changed my life. When I was 23, I was floating through life. I was an anxious person who took all the wrong things too seriously, and not enough good things got through that anxiety. Then, my kidneys failed. I was in a hospital bed being told that I might be okay if I made it through the night (my potassium was so high they thought my heart might stop).

That got me thinking about what is important in life. Then, two years later, my father dropped dead at 58 on Thanksgiving. That cemented it. CARPE DIEM! I began to focus on what I can do, not what I cannot. I started focusing on my career more seriously, but in balance with my personal relationships. I began to cherish my loved ones and realized that the impact I have as human being is more important than the Porsche parked in my garage.

Yes, there is a Porsche parked in my garage. I freaked out a little about how short life can be and bought my sports car…and many other things as well.  However, I am now on the other side. Sports cars are great, but a balanced approach to life is more important. Yes, you might not be here tomorrow, but when it comes to money, you always have to plan for another day. I was at a friends car dealership once and someone asked if my car was for sale, the owner of the dealership, my friend, joked I would be buried in it. Funny, but not how I want to be remembered; as the guy who loved his Porsche. I would rather be remembered for the lives I have touched. Of course, those are not mutually exclusive, but what a waste to be buried in a 911 Turbo!

Comments
5 Responses to “About this Blog”
  1. Suzanne Robotti says:

    David, write more! So glad you are creating this record for yourself, for your friends and for everyone.
    Su

  2. Vin Sano says:

    This is a journey. Thank you for allowing us to come along with you. You have more support than you can ever know.

    Vin

  3. GodMan says:

    You did not mentioned what medicines you are being administered in the Blog. I searched for it. Being a FSGS myself on post transplant, want to know….Keep it up David…

    • dakski says:

      Thanks for the kind words. Check out my most recent post, “8-11-13/Stable, but still tired/Organ Donation/Medications,” where, at the bottom, I outline my medications post transplant.

      Take care and be well.

      David

    • dakski says:

      Thanks for the kind words. Check out my most recent post, “8-11-13/Stable, but still tired/Organ Donation/Medications,” where, at the bottom, I outline my medications post transplant.

      Take care and be well.

      David

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